20.05.2021 | “Lately I’ve Been Feeling Kind of Fragile…”

Lyrics: “Faithful Son” ~ Frank Turner, 2009

Sleep | Most nights I wake up around 5, no matter if I go to bed at 10 or midnight. Which is so weird. Not getting quite enough sleep at the moment, so I’m looking forward to the long weekend.

Health Emergency Update | The last few days were a bit of a whirlwind of worry and organising and phonecalls. The situation is under control for now, immediate rehabilitation measures in progress and all. The hospital had planned to discharge to home care by the end of May, but it quickly became clear, that’s not possible on our side. We can’t provide adequate care at home for a person with this kind of health issues at the moment. So we’ve organized short term care for some of June. More rehabilitation measures as well and probably some adaption at home and fingers crossed they can return home at some point.

All the anxious worrying definitely contributed to the lack of sleep.

Work | Still a lot to do. Still feeling overwhelmed more often than I’d like. Still feeling too sluggish more often than I should. There was a reason I took the week off to recharge, but then the emergency happened. Oh well. We’ve got Monday off as a public holiday, which is good.

More thoughts… | I had more topics I had wanted to write about, but right now these thoughts are lost somewhere in my messy brain. I’m still considering a few days by the sea later this summer, but that depends on how our patient will improve and all that over the next few weeks. I definitely plan to do a day trip to the sea as soon as I can visit other places without the requirement of rapid testing and all, because on 13th July I’ll be officially fully vaccinated + the two week period, for it all to kick in.

There is a thought: at my routine neurological checkup my doc reminded me that my immunosuppressive medication might tamper with the vaccine result, in the way that the vaccine might not work as good as it should in my body. Which… SUCKS! I mean if that would be the case. He adviced to get a antibody test after a few weeks and be cautious till then. Bit of a blow to be honest…

Maybe there is a reason my messy brain hides these thoughts. Anyway here is a photo from the beach last year…

Ameland (NL), September 2020
Ameland (NL), September 2020

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